Paroxysmal Nocturnal Hemoglobinuria Registry

Study Objective

Primary:

• The PNH Registry will collect data to evaluate safety data specific to the use of Soliris
• The PNH Registry will collect data to characterize the progression of PNH as well as clinical outcomes, mortality and morbidity in Soliris and non-Soliris treated patients

Secondary:

• Raising PNH awareness in the medical community and subject/potential subject population.

Participation conditions

• PNH patients of any age, including minors, that are receiving Soliris or
• PNH patients of any age, including minors, that are not on Soliris treatment

PNH patients include all patients with a diagnosis of PNH or a detected PNH clone.

Centre Hospitalier de Luxembourg